Links, Research & Treatment



Below are links to bits and pieces that I touch along my way, I have found them helpful, comforting or useful.....you may also...




CHI Research Papers and Treatment Help
chi (chronic histocytic intervillositis) support  - a support site for anyone affected by Chronic Histocytic Intervillositis (CHI/CHIv) also known as Massive Chronic Intervillositis (MCI). This is the only site that I am aware of that groups together all medical papers.  I have also published my papers there with recommended treatment plans based on my experience and experiences of others who have received this diagnosis and a paper explaining what CHI is.  I do not endorse the Facebook page however.

CHI - Other Blogs of Interest
Lissa Poppy -  Beautiful site that belongs to a dear friend whose precious little girl that was born in Westmead, Sydney, Australia on March 08, 2002 lived for 3 hours & 13 minutes due to CHI/MCI
Aaron Jarnason - Born early and very small he gave it his best shot.  Beautiful little man, this blog is by his Mummy and she blogs about all things Jarnason, if you want to read Aaron's precious story scroll back and read from May 29th 2011.
Wyatt Olig  - A testament to a brave little warrior man who fought against CHI to spend some precious time with his Mummy. 

Help and Hope through Support
SANDS - Stillbirth and Neonatal Death Charity
A Child of Mineoffers a supportive website, with information and guidance on all aspects of losing a child, from the practicalities of when a child dies and more
Tommy's Support Tommy's, a charity that funds medical research into miscarriage, stillbirth and premature birth and provides information on having a healthy pregnancy.
Finleys Footprints  - A beautiful site that offers advice and hope in buckets
Aching Arms -Baby loss charity run by a group of bereaved mothers who have experienced the pain and emptiness of leaving hospital without their much wanted baby
Molly BearsMollyBears.com is a US non-profit organisation that creates weighted teddy bears for families coping with infant loss. Will deliver to the UK.
The Lily Mae Foundation - The Lily Mae Foundation raises money in order to provide much needed support to Parents and Families who have lost a baby to Stillbirth or Neonatal Death.
Loss Through the Looking Glass - A shared blog created by three bereaved mothers
Saying Goodbye - Website for the Saying Goodbye services, the national set of remembrance services, the first national set of remembrance services for people who ahve suffered miscarriage, early term loss or early infant loss.
Aidan's ElephantsAidan’s Elephants is a non-profit organisation based in the UK.  We are a sister charity to 4Louis, who aim to supply hospitals throughout the UK with the resources to help parents when a baby dies before, during or after birth.
Sand's Book - How I came to hold you book information and other handy links
Faces of Loss: A community of women putting a face on miscarriage, stillbirth and infant loss.  Supporting and providing support. 

Help and Hope For Dads
Grieving Dads Project - This project is designed to reach out to all bereaved dads and to provide a conduit to share their stories.
Little Footprints Father's Page & Resource Pack- written by fathers for fathers from our support group
Dad Links - Life after baby loss: Grieving dads get support from online peers

Hope and Help through Reading
'Exact Replica of a Figment of my Imagination' superb novel - direct link to this and more is available on the home page of this blog site.
TAMBA's Bereavement Booklet - available through TAMBA (BSG) (details below)
The Lone Twin - Understanding twin bereavement and loss

For After
Now I Lay Me Down to Sleep - UK photographers  - Professional photographers who can take some amazing photos of your little one, normally without charge.
Cheeky Chums Online - Tiny Baby Bereavement Section, Micro Baby Loss Clothes, Tiny Baby Burial Cribs, Fetal Demise Pouches, Tiny Teddies from 1 inch
Funeral Songs  - I spent a long time trawling for the most suitable song.  This site showed a good selection.
Funeral Poetry- Another useful site for readings and beautiful poems

For the Memories
Bereavement Memory Boxes - simple wooden memory boxes at reasonable prices.
To Write their Names in the Sand  - stunning work by Carly Dudley who writes your child's name in the sand at sunset creating the most stunning memorials.
The Butterfly Beach  - sister site where Carly draws butterfly memorials.
International Babylost Mothers Day - A site about Mother's Day for Special Mummies
International Babylost Father's Day  - A site about Father's Day for Special Daddies
Small Bird Studio  - If you like my site go and speak to Franchesca about yours, she's brilliant!
My Tangible Peace - Hand sculpted miniature baby angel sculptures 
The Memory TreeUK Specialist for Unique Baby Loss Keepsakes and Gifts
Gabriel's Garden - Picks flowers and takes a photo adding your angel's name
Barely There Bears - tiny little hand-stitched bears made on commission

Articles
Stillbirth: a pain left unspoken -  The Guardian (UK) 19/08/12
Why Stillbirth Remains a Mystery - BBC News (UK) 07/08/12
Heartbreaking moment a mother cradles stillborn daughter midwives failed to spot was critically ill -  Daily Mail (UK) 21/08/12

Other blog sites for angels can be found on the home pages under 'My Blog List'